I don't know why?

I am in one of the happiest places, I'm on holiday. The same hotel complex we have visited for the last six years. We are recognised by the staff and we all in turn know thier names. They have watched my children grow over the years from buggies to the now confident key caring independent selves.

It is a safe place. We all know what we can eat and where, what pool is what temperature and what restaurant plays the football. Yet amazingly there are still incredible things to be discovered, first times that neither I nor Zippy thought would happen.

Example 1.

Zippy and I are sharing a bedroom for the first time, not just sharing a room but we have zipped our single beds together! Zippy and I have swapped places - he has lost three stone and now does not snore and I have started to snore (LOL - I'm getting my own back).

Example 2.
I am wearing 'just a swimming costume!'. For those of you, who have been on holiday with me, will know I usually wear at least one pair of cycling shorts, one costume and a knee length dress.

It all amazing!!! It's all victories and moving forward moments. BUT! I need to be truthful to myself and have a blog rant to get tensions OUT!!!. Also because I can't be bothered to drink to relax as my liver hurts. Yes my liver is protesting or maybe it's my gallbladder (humph) so I need another way to go RAAAAAAAAAAA!!!! SO here goes!

I love swimming and playing catch with the kids. Finding myself switching ages, I get caught in different memories. Wearing Just a swimming costume, something I have not done since childhood, also messes with all my senses. I love it and feel free, the wind hugs you and the sun strokes you (body memories start to fight); Ages switch and flip through my brain and body.  

Back to the present those are my children, I am not a child. I organise everything, fold all the towels, make the bed, and clean the kitchen; my age returns. Then fear creeps around and I realise I have no control over my food but this year there is an abundance in our fridge, thanks to the lovely Mrs P, and we have food vouchers. I switch ages again and talk to all my selves reminding them we are all safe and will not go hungry. Coming back to 2016 I try to remeber what my children have eaten, what they might need to eat, whether thier behaviours are hunger based, over stimulated based or sleep needing. 

It would be lovely to get rid of all this ridiculous worry by having a pint of a large bicardi and coke, as this option is not available I leave you with the following;

What about sun screen?

When did we last all use sunscreen?

Check, check no one is burnt...

How many calories have we consumed?

What's the time?

Where in the day are we?

Who is with me now?

How old are you?

Where did you go?

Is there anything I can do to help you?

Climb back, climb back.... Don't run from each other, if we run we will just keep colliding, Who are you? Where are you from? How can I help you? Would you walk with me? Can I introduce you to my own children? Who are you? Where are you from? ...... Roll over!...... Oh it's just Zippy. That body heat is not a threat. That breathing is not going to kill you. In fact the heat is OK too. It's not going to be something you have to endure and survive... Walk with me my ages... Walk with me.... Let me walk with you in the heat that is to be enjoyed and celebrated and maybe I say thank you to me clever liver for helping us all dance through our panic and fear. All my ages, all my voices - we are safe! Let's rebuild and keep mapping a new memory path whilst respecting and grieving the old.

The most radical thing I can do today is....

The most radical thing I can do today will not be painting the other half of the bedroom that Zippy and I are making, as my temptation suggests.

Nor will it be:

• Drilling seven new cupboards to the kitchen wall
• Moving all my art things out of storage
• Taking all and everything we don't need in the flat to charity shop or recycling center
• Putting a tarpaulin on the lawn and digging out all the garden waste and making a new pallet compost bin

Temptation!  Suggestion! Frustration! 
Temptation!  Suggestion! Frustration! 
Temptation!  Suggestion! Frustration!
NOW!!!NOW!!!NOW!!!

'I am more important!!" 

"no I am more important!!!!"

 "achieve me and I will be the answer!" 

" no I'm the answer!!"
Run freeze run freeze run freeze run freeze run freeze!!!!!!!!!!!!!!!!!!!!!

It will not be:

• Clearing out my daughters room and scrubbing the paint off her window
• Painting four pine wardrobes, five chest of draws and four side tables
• Hoovering the flat to within and inch of its life
• Cooking mushy peas from scratch
• Painting the floor blue
• Swapping all the mattresses around

• It will not be giving into all the voices dancing and colliding as they shout and whisper what "should be done?". 
• It will not be giving into the frustration of the looping 'One Direction - Story of My Liiiiiiiiiiiiiiife'! Stupid Unfinished song line that I woke up and that is presently is trying to knock Kate Bush (CBE) of her perch. 
• It will not be giving into the need to hide in bed and lock the door and wish the day away, whilst simultaneously thinking I actually have enough energy to run twenty marathons and cook dinner for half of London.

Actually the most radical thing I can do today seems harder than all those things.  
Today I need to have a shower and wash my hair.

Sticking out

I once watched a series of you tube videos looking at how different communities embrace harsh experiences. For example if a whole set of people have experienced an earthquake then they journey together in the path to processing that experience and coming to terms with it. Everyone in the same boat wobbling along together, everyone having and giving support in the most basic form by just knowing what the other has experienced the same experience.

Similarly we at the moment in the UK have just been through the last few years of our banking system collapsing. Everyone has an opinion on it and has or knows someone that has been affected by the capital fear. Its a journey we as a country have travelled together and are still travelling together.

We have friends that work in the village in Romania (near the old orphanage which made us shudder on early 90s news headlines) and although divided in its opinions there is an understanding for those who grew up in the orphanage, there is a massive amount of unsaid communication as to what and why those individuals are the way they are. 

Frog Face

1991 aged 14 and 'frog face' started to follow me. I did not get away until 1997 then aged 20.

Frog face would wait for my school bus and lurk in the roads opposite. Frog face would watch me through the door to the sweet shop I worked in. Frog face would call, send letters and sit on the other side of the road watching our house. Frog face could appear at any point, at any time of day. I could not shake Frog face.

You may think that Frog face was a figment of my imagination, unfortunately that was not the case. For almost 6 years I was stalked.

As previously discussed I have a complex history. Frog face was just part of what has made that thick strong 'C' in the word complex.

Already fairly damaged in my world view, I found myself having to learn to live being disempowered daily. By the 'fear' of the 'ifs, maybes' by the potential of Frog face appearing without my control. I would stand on one side of my front door not knowing, would there be another note on the other-side. I jumped if ever the letter box clanged, or the phone rang.

For reasons I cant go into in this blog, I was unable to tell any one about my situation. All I will say is that Frog face was an adult who held a secret over me. To endure those days at the time, I believed outweighed the shame of anyone finding out. (As I said my perspective was already damaged).

So why write this? if I don't want to write about what happened and why?

Well I love brains, I love how they cope and how they protect themselves. During those years I found my brain doing just that. Protecting me in the best and most honest way it could. You see my brain was my greatest friend. We argued, we fought, we had stand offs! we did all the things together that BFFs do. But it has only been in the last three years that my best friend 'brain' has aloud me/us to share our friendships with others.

Over those long years my identity went from singular to plural. It still remains that way today, I am not an 'I' I am 'we'. At first I split myself in half. The day belonged to Frog face but the night was mine. During the day hyper vigilant, my whole focus was on avoiding and planning ways of out witting Frog face. At night I sewed a hidden pocket into my jeans. In it I tucked a protective knife 'we/I' would go out walking with the families fat springer spaniel. I'd walk in freedom owning my world and revelling in the sense of safety.

Pretty quickly I realised another split was needed if I was going to avoid anyone  knowing what was happening.  At school I created another split in another world as although bullied, it was at least 'seen'.

This splitting carried on until I was nine different people / personalities.  I jumped between these personalities daily depending on the environments encountered.

Soon we were all defined enough to speak for ourselves. We made an internal community. We had all our answers, we did not need anyone. Having lived through this process quite naturally and at the time logically. I have nothing but respect for grey matter.

I met Zippy and so started the great clamp down on the now completely dysfunctional set of people living in my head.  The greater the safety I could trust, the greater the need to want to quiet everything down into something less confusing. As Zippy says 'Carwen nothing directly bad has happened to you now for 13 years'. Today my personalities have been whittled down to bare shadows. Only their voices remain with me. I have learnt to accept them and accept us all living and chatting in my cortex. On good days we are friends, on bad days we are enemies  (especially when I'm tired), there is sometimes just complete overwhelm. But as my strap line says. I am Colourful Carwen, a crowded brain learing to be at peace with itself and its inhabitants!.

Body brain and bed! (A short poem)

Energy, physical energy!

It would be lovely to have enough spark
to go from morning to night.

To not give up half way through a day
and SHOUT "turn out the light".

But what we must realise is our head
is never severed from our body's form.

Our beautiful nerves and sinew are intrinsically linked
and this can make the whole mass forlorn.

It's just like a headache
measles or stress. 

head and nervous system intertwine
but sometimes end up in a relational mess!

So spare a thought for hurting heads
that can't stand straight on toes. 

It's not that they are lazy and can't get out of bed,
like everyone thinks they know.

Fact is they are physically exhausted
trying to move in a tied up rope. 

Takes a lot to keep a perspective
Energetic... Light... Hope.

Next time you take ill
please take note of it's effect on your whole mass.

Spare an understanding thought for those
who feel they keep coming mentally physically last.

Carwen

Tourettes friends and family weekend

Family & Friends weekend 2013

May 2013 -  The whole family are all helping to put together a holiday weekend for people and families affected by Tourettes.

Back then having only showed or talked about the inner workings of my world with a handful of people. Back then it was to much of a risk, not only was it probable that there would be a melting internally but I was scared and covered in shame. Still at what seemed like the mercy of my physical self and unsure / unaware of why my body reacted the way it did.

As our fellow campers arrived, we watched from our camp. The dodge (our beloved converted camper-van) was placed away from the majority in the corner of the field. This placing of distance was a standard for me and Zippy as partly it meant a place for me to retreat to. A place I could complete my rituals to calm down and not being seen by others but there was a huge surprise to this normality!