Showing posts with label anxiety. Show all posts
Showing posts with label anxiety. Show all posts

Wednesday, 24 February 2016

The most radical thing I can do today is....

The most radical thing I can do today will not be painting the other half of the bedroom that Zippy and I are making, as my temptation suggests.

Nor will it be:
  • Drilling seven new cupboards to the kitchen wall
  • Moving all my art things out of storage
  • Taking all and everything we don't need in the flat to charity shop or recycling center
  • Putting a tarpaulin on the lawn and digging out all the garden waste and making a new pallet compost bin
Temptation!  Suggestion! Frustration! 
Temptation!  Suggestion! Frustration! 
Temptation!  Suggestion! Frustration!
NOW!!!NOW!!!NOW!!!
'I am more important!!" 
"no I am more important!!!!"
 "achieve me and I will be the answer!" 
" no I'm the answer!!"
Run freeze run freeze run freeze run freeze run freeze!!!!!!!!!!!!!!!!!!!!!

It will not be:
  • Clearing out my daughters room and scrubbing the paint off her window
  • Painting four pine wardrobes, five chest of draws and four side tables
  • Hoovering the flat to within and inch of its life
  • Cooking mushy peas from scratch
  • Painting the floor blue
  • Swapping all the mattresses around

  • It will not be giving into all the voices dancing and colliding as they shout and whisper what "should be done?". 
  • It will not be giving into the frustration of the looping 'One Direction - Story of My Liiiiiiiiiiiiiiife'! Stupid Unfinished song line that I woke up and that is presently is trying to knock Kate Bush (CBE) of her perch. 
  • It will not be giving into the need to hide in bed and lock the door and wish the day away, whilst simultaneously thinking I actually have enough energy to run twenty marathons and cook dinner for half of London.

Actually the most radical thing I can do today seems harder than all those things.  
Today I need to have a shower and wash my hair.

Thursday, 12 November 2015

From eight to nine

I've not blogged for a while, not because I haven't wanted to but because I've been learning. For those of you that know me, I love to learn. Sadly however I have had to come to a realisation that no matter how much you "know" or can understand whats "happening" knowledge itself will only get you so far. It can give meaning, help you express and communicate, it can even give you confidence, but there are some things knowledge can't do.

It can't stop your over wrought nervous system shaking when something spontaneous happens, it can't get rid of emotional pain trapped inside you, it can't help explain fear even if the logical explanation might help comfort "it" a little.

So as those of you who read my last post have realised, I have got to a stage where I am ready to introduce my mind to my body. "What?" you may ask "your attached to your body, what on earth do you mean?".

Sunday, 27 September 2015

Multi-tasking

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This morning I tried to brush my teeth at the kitchen sink whilst waiting for spotify to download and pick cabbage out the plug hole from last night's dinner. One voice was shouting "do one thing at at time", another "no she won't" and another "you must be more efficient!" and yet another " leave her alone" "give up give up"everyone was arguing and trying to get their point over as the winner of the situation.

Then like a blinding moment I travel back to boarding school and it was Wednesday. On Wednesday we had to change our sheets on our beds. We all panicked on a Wednesday morning 5:30am rushing to add an extra job into our already tight schedules.

Each dormitory had about thirty iron beds in it. In the mornings we used to take a quick walk to the toilets and back again (running forbidden and toilets being outside at the end of the dormitory blocks) then we would quickly march back to make beds with perfect hospital corners (exact floor to top of counter pain height). The fold under our pillows a certain depth and our pillows evenly plum flat on the lumpy mattresses. After that we had to dress perfectly in our uniforms. Socks were folded three times down our legs to create the perfect ankle and  shoes had to be shining collars folded at the right height at our necks. Our legs and arms had to be creamed to stop dry skin and our hair brushed so as to not let any touch our collars. After that our lockers and foot chests had to be pristine and neat. We would all then stand at the foot of the bed and wait for inspections. 


Now the hard thing about inspection was two fold. One was the ability to hear he matrons working there way through the other dormitories dolling out the daily punishments and ridiculing those who had not met expectation or had wet the bed. The other was the absolute panic to have your own dormitory ready. Did you risk helping those that were slower or unable to get the sheets flat and folded and be found away from your area. Did you try and help someone who clearly had hair loose, after all we did not have individual mirrors we only had a small 12x10inch mirror situated at the furthest end of the long rectangular room.

Then there were Wednesday when not only did you have to cope with all the above but you also had

to strip the bed and change the sheet. As  I have said before the majority of us struggled with Wednesdays. This morning however as I tried to be an octopus, getting cross with the toothpaste I had swallowed and the sliminess of the cabbage making (its so hard to grip), I realised what drove so much of the panic. I realised that although our whole day at boarding school relied on time; being on time, doing things in time, waiting for time to be over or a new part of the timed day to start. Nowhere do I ever remember seeing a clock except in the prep room and school hall, everything else was communicated by bell. I realised how much power that lack of clocks gave the teachers and matrons. After all what better way to put the fear of God into several hundred 5-11 year olds than to hold them accountable to something that they have no ability to manage. It meant that we never stopped working towards the aimed piece of everyday and if you did take a breath or had a little day dream it could come back and mean horrible consequences.

So back to the present day I say to myself it's now ok to do one thing at a time. Brush your teeth then get the cabbage out the sink and then download the album you want to hear. Nothing is chasing you anymore. You are now aloud to know time, manage time and plan in time.

Sunday, 16 August 2015

Films one and two.

 One year a very important event happened. I think I was about nine. Our church farm was going to be sent two films. Naturally we were all excited! We were one of the fortunate families in Zimbabwe to have a Betamax video and occasionally we would go to drive in movies. These films however were going to be for everybody. Even better than that these films were apparently going to

help save people. Now you didn't have to go a hundred metres to realise that there was a lot of saving to be done. As a country we were three years into a six years drought and our dam was drying up, the crops needed rain, people were getting extremely thin and our cows were being rationed for their dried husks.

I was so excited we were taken to our church building on town after dark and the little hall became rammed. The Pilgrims Progress began. However as Christine stumbled through his journey I didn't understand it at all and it just became more and more upsetting; he was having a horrible time and even when he was doing things that he thought would make him happy - they even end up hurting him. My stomach twisted more and more and I cried. It was a horrible film! I couldn't understand how on earth it was going to help anyone.

Wednesday, 1 July 2015

Sticking out

I once watched a series of you tube videos looking at how different communities embrace harsh experiences. For example if a whole set of people have experienced an earthquake then they journey together in the path to processing that experience and coming to terms with it. Everyone in the same boat wobbling along together, everyone having and giving support in the most basic form by just knowing what the other has experienced the same experience.

Similarly we at the moment in the UK have just been through the last few years of our banking system collapsing. Everyone has an opinion on it and has or knows someone that has been affected by the capital fear. Its a journey we as a country have travelled together and are still travelling together.

We have friends that work in the village in Romania (near the old orphanage which made us shudder on early 90s news headlines) and although divided in its opinions there is an understanding for those who grew up in the orphanage, there is a massive amount of unsaid communication as to what and why those individuals are the way they are. 

Friday, 19 December 2014

December!!!!

Christmas month... Thought patterns...
November... Anticipation of December intense intense intense intense.....

December..... Try and plan intense intense intense....... Want to get it right..... Intense intense intense intense ......... Must not forget first lists made...... Intense intense intense.

Dates start flying around, dinners drinks, being social.... Put in coping plans for each as I would like to enjoy them.... Intense  intense intense intesnse......

Cloths for events, I can't wear my usual. New feelings, new fabrics.... Intense intense intense....

Loads of lights feed my overstimulated brain cells, loopy, loopable, looping songs.... EVERYWHERE!!!.... Intesnse intesnse intesnse......

You get my drift... Present buying, family, friends, receiving gifts, trees, wrapping paper, Sellotape, hiding presents, stockings, eating to much, drinking to much, being mum, being mate, being mrs....... Intesnse intense......

You make think I don't like Christmas but you would be wrong. I very much like the values of Christmas. I very much like spoiling and showing my family and friends how much I appreciate and love them.

(But the love in my belly is hard to interpret into anything tangible). Living in my head means, Christmas, in all it's wonderful colour is a little bit like being a driver in the grand pre taking a hair pin bend...

woooooooshhhh, pre plan anticipate, take in enviromental conditions, assess road surface, apply correct throttle and brake, keep an eye on the other drivers woooosh!!!!! go into the corner reassess all variables, take corner, assess again, power out!!!! Wooooosh... assess straight.... take in all variables ...... Speed ..... Road surface.... Throttle.................

Love you all appreciate you all very much and I'm excited to live 2015 with you all!!!! Merry Christmas.🌸🌸🌸

Tuesday, 2 September 2014

Can't sleep

So I thought I would just make sure there was a reason to still be taking a sleep aid a night.

I find myself writing this in a catch twenty two, having not taken my little blue pill at the prescribed time of 9pm I potentially now will loose a whole  nights sleep!!!! Boooo!!!!!

Or, it only bring 1am I could take one it would kick in by 2am. As these little beauties last twelve hours, It would mean loosing half my day tomorrow. Or a the least being awake made of concrete.

That's a basic! The next issue is that my mind is free to play. Humph!!! And I am not alone.

 I have been fighting to try and stop going to the toilet every half an hour as one voice suggests 'your bladder is full'. Another had me obsessed with finding a song from zippy's computer, which I finally listened to by blue toothing it to the steroid in the kitchen.

 And No!!! I do not want to 'go on the exercise bike' till I'm exhausted!!!!! And No!!! I do not want to 'go and check if the fox is pooing outside!' 

I feel resigned can I cope with seven more hours of this. This which will only get weirder and more intense. Why oh why did I not take the pill. Oh yes I remember know because 'what if I'm ok now! What if I'm better! What if people found out! I relyed on pill induced sleep. I am ashamed. Surly I should be better than this!

I fight to make sure I am not just feeling another's pain interceding on some poor disempowered behalf, and so have send emails and texts to make sure everyone is fine. Now paranoid I have to cope with the possibility I woke them all up.

My ears are ringing and banging. Do you know what, writing this has helped. 

Instead of me working up to waking zippy up in another two hours (probably in floods of tears) asking, 'what I should do?', my head is full of people and banging and ringing and suggestive voices!! (Poor zippy,humph!!) and him asking, 'why didn't u take your pill?'.

I choice the blue pill!!!! 

Sunday, 6 July 2014

My Creative Twin

Been wanting to write about this for a long time, finally there seems to be enough meaning.

As you may or may not know I am creative , having what I almost term as a relationship with it (creativity). I would describe it as yet another split in my personality (me and it /  it and me).


Last year I joined an art group in fear and trembling knowing it was time to meet my nemesis. Prior to this I had only allowed myself to only make crafty things, no paint or unstructured elements permitted.

But I have a twin, an untamed sibling, and we are joined at the shoulder. She has her own head and neck and I have mine. We battle as to who's eyes to look through and whose ears to hear with; she works alone and only in isolation; she can not communicate but she is dominate.

From 2000 till 2012 I kept her hidden and insisted on my vision only. I explained to her that her ways of doing things was impossible! I explained to her that I needed connection and relationship, unwilling to cope with what she produced I feared dying myself if it carried on. We share a body but constantly fought and argued and she won to often.

Monday, 9 June 2014

Looping

One of the common things I tend to be talking about with people at the moment is this terrible business of what my sister and I have nick named 'Looping'.

Looping from our perspective is defined as 'something- be it  a physical action, internal thought or external that dis-empowers you by your inability to control or choose to have its company'. 

Now I tend to mostly have only 'internal thought' and 'speech' looping

So I will write from that aspect.  My aim is to communicate some of the things I have identified.

My 'loops,' as I posted previously, are repeating suggestive voices, unfinished lines of music and external speech rules which must be completed in order for speech to move forward to another subject. I am never without noise in my head because of my tinnitus, so I see that as my base level on a 'good' relaxed day.  However I am learning now to be able to map the relationship between life stressors and the other 'loops'.


But another strange common denominator seems to be appearing in the patterns, and that is the frustration of being unable to complete.

 I'm staring to learn that you either give in to 'looping' and it rules you or, as I am trying at the moment, you try to embrace part of what drives the loop to start again and that for me is a great fear of finishing.

I'm not going to say that I understand this because I don't, I just know that when say a song line is repeating 'she sailed away, she sailed away, she sailed away'; I might as well be wading through setting concrete to get my brain to go 'she sailed away on a lovely summers day on the back of a crocodile'.  If by some miracle I manage it, it will quickly be replaced by another line from  another song.

So I have to ask myself is it worth the fight and the frustration, or do I just pack it away with the ringing/ banging and 'get on' with my day?

It's a catch twenty-two because mentally you then must find something equal to or above in intensity to be able to ignore all the other 'looping'. Achieving this will often mean rapid thinking, rapid speech or strenuous physical or repetitive movement.

It's hard to write this blog as I don't have any set solutions, I just know that I journey along a road of ups and downs. Days of coping, and some days of hiding. Maybe I just now accept the journey for what it is unknown. 

I have found comforts though that make a level of peace achievable and I share with you two of my best helpers. 

1. TV
Watching a few episode of a series back to back on a bad day can be like manner from heaven. This does unfortunately means that nothing else gets done however as I'm sure other 'loopers' will agree, piles of washing and 'must do's' can take  second place if you are actually in a position to get calmer for a day.

2. Music
This is my gem. I am often seen wearing headphones and what I do is choose a song that I can cope with and set my phone to repeat that song. It has been known for me to listen to a repeating song all day and all the next day until things calm done. What I find is that, where as my 'loops' don't end, the song does end and then it starts again and finishes again. This gives me such relief  and a sense of 'winning' as I  know I am not going to get stuck, the phone in a way takes control, guarantees to carry me over  into wonderful endings.

It's all a wobbly wobbly world, we all have our quirks. I'm aware I've not finished this blog, as I have not written about speech patterns or put a proper ending to anything but, ironically I need to go and fold some books now to calm down. Thank you for reading and thank you for journeying with me.

.........

Wednesday, 7 May 2014

Changing a tyre

Recently I have been acutely aware of how much Zippy has to plan ahead for our family. I have, in light of this and the doubling of my meds, been trying to take more pro active responsibility.

The tyre in our car needs changing! I am going to be pro active! I am not going to leave this for Zippy to do!

Boldly I set out to 'Sam Tyres'. I gulp and reason with myself that 'garage land' is a land I understand, I can do this!!!

The car pulls right and immediate right again into the thin blue gates 'Sams Tyres'. The first thing that strikes me is a scene of utter chaos and the noise. 

I have pulled into a car park of Turkish, Afghan, African, Polish, Eastern European 'man land'. Theres a man with velvet red slip on shoes. Another with fake crocodile boots, yet another in sports direct steel toe caps, all covered in plaster dust.. It goes on.

Somewhere in my vague consciousness I can here all the various languages. I'm aware of a very un-English like jumble of cars and vans all trying to be 'next' for a new tyre. Horns are honking and in the din I realise I have parked right in the centre of the gates.

I have no clue how to express or navigate me and my car's needs. I get out, breath and look for eye contact with some one who understands I am a customer.

No one steps forward or reasures me with a helpful glance but I'm bloody minded and I stride up to a ford transit perilously balanced at 45degrees. I demand help from the mechanic by standing in a way that casts a shadow over his work. He speaks first "tyre?" he half shouts in an accent, I'm taken aback so I nod. "Tyre!" He goes on using his fingers "One two three four?" He looks at me questionably.

I'm not sure what to do, aware that velvet red shoe man has turned with interest in his skinny jeans. I hold a finger up "one" I reply to the mechanic who is already strutting purposefully towards our Citreon.

Taking a cigarette out of his top pocket, mechanic man lights up and roams around, "two" he says challengingly. "One" I say firmly, pointing at my offside front tyre. 

He seems disappointed, I feel triumphant that I didn't give in. "Drive your car" he commands pointing at what looks like an impossible path to the garage.

I feel myself freeze, I know I can't do it and my heart pumps. I hold up the keys and squeak "you". He looks disappointed, or at least resigned, and hops in the car.

Honking the horn repeatedly, an incredible vehicle dance starts. Men seem to appear from everywhere. Guiding, suggesting, hustling, whistling, until my car creeps its way through all the others to the front.

I myself am guided into a ply board makeshift hut. A hut containing three white garden chairs. I feel ridiculous,  have lost control and can't leave! My car is now trapped by others and I'm sat in a little 2m by 2m hut with its low roof and walls painted in yellow gloss.

Wondering how to keep calm I struggle to sit. Should I cross my legs, sit forward or sit back. Knowing none if the panic is really relevant, I watch as my car is jurked up and down on the trolley jack and air drill screeches. I remember all my lessons on tyre nut torque and wince. Then I look in horror as at incredible speed and co operation due to yet more honking and gibbering, my car is skimmed out of the garage across the car park and out the gate.

That's it I crumble! I don't know whats happening! Have they stolen my car? Are they test driving it? Where's it gone? I'm supposed to be collecting the kids from school in twenty minutes!!!

Body frozen unable to move, the same mechanic ambles over, "your car is dirty", I stare at him unmoving, "dirty your car", he seems slightly unnerved. I hear from far away a voice exclaim in a very posh voice "oh it's terribly filthy, most disgusting".

The words have come from me only I don't recognise them or the accent at all, dismayed I realise I must try and match that accent, but I'm so confused by it myself that I cannot. 

"Thirty pounds" says the mechanic. Not understanding all I can think is wheres my bloody car! "Thirty pounds for tyre and car wash" he says pointing out of the gate, "you pay card or cash?". 

Now when frozen (those that know me understand), I can not move until some bizarre thing goes ping in my head. However if someone else gives me a command then I will move instantly.

Thankfully mechanic man at this point gave me his full attention, (mostly because I think he thought I couldn't pay), squaring me full in the face he firmly repeated "come pay, come pay" waggling his finger at the bright blue hut opposite the yellow century box.

Having payed by following his blunt instructions, I then walk with concrete filled legs across the endless length of the car park. (Im sure it's tripled in size and velvet red shoe man is still wandering about on high alert). 

Through the blue gates and through a similarly styled yellow pair, in relief I found my car. Clean, sparkling, glossed tyres, polished interior and smelling of sweet spring flowers. 

Shocked, I smiled, marvelled and slid into the drivers seat. Looking at the gleaming gear stick and buffed glass. Where else but Tottenham could you get such a multi cultural experience, a full hand valet and a new tyre for thirty quid?

Thursday, 1 May 2014

Conversations

Silence is a very safe space.

Silence is something that's easy to achieve but silence is a mock friend. It is impossible to build bridges out of silence.  Similarly only listening and commenting on what everyone is doing with their lives is equally one sided and isolating.

So what are these things called group conversations. How on earth do they work. I find them terribly confusing but am determined to persevere.

Recently I realised a great longing to be connected to people, however, I have not got much training in the correct ways of making this happen. The following are some of the formulas I have tried to work it all out.

Friday, 11 April 2014

Three in one

There is a great big wall in my life at the moment. Split in two: one Carwen on one side and one Carwen on the other  (and then a third watching from somewhere high up).

Firstly let me describe the wall, it's made of thick concrete and it's all grey. The surface is smooth on one side but gritty and sandpapery on the other. It's tall so so tall and it's wide. In short it's impenetrable and it's so densely made even sound can not get through. The Carwen stuck on one side has no chance of getting to the Carwen on the other. Only the Carwen high, high up can see into both sides.


Let me describe each Carwens predicament. 

The Carwen on the left hand side is presenting what look like anger. She is volatile and flies off the handle in a moment. She is the strong, the determined and the fighter. The wall on her side is smooth and she uses it as a guard to watch her back. If anyone approaches this Carwen they are met with suspicion that can turn into attack at the mere fluttering of potential threat.

The Carwen on the right side is beaten. She has been trapped by this wall for such a long time. Her body is thin, tired and bruised. She loves the Carwen in the left hand side, she wants to calm her down. Understanding that really angry Carwen is only scared, the anger is a front for deep pain.

 But now she sits immobile, the wall on her side is  sandpapery and rough. It scrapes and shaves at her thin arms and legs. She has sat now in defeat and despair, knowing her twin is hopping around misunderstood and communicating everything that is not true.

The third Carwen, the observer. She looks down on the other two. She watches as if it were an amusing game. She looks from one to the other but feels nothing. There is not much to write about her as looking is really all she does. 

Occasionally she considers climbing down to help one or the other but she is met with such confusion as to who is in most need. So the result is to just sit passively and not get involved. She is frozen by overwhelm.

This Blogg I dedicate to my young fighter friend. I write on your behalf as you are to young, in the hope that my experiences will help others see meaning in yours.

Wednesday, 12 February 2014

Tourettes friends and family weekend

Family & Friends weekend 2013

May 2013 -  The whole family are all helping to put together a holiday weekend for people and families affected by Tourettes.


Back then having only showed or talked about the inner workings of my world with a handful of people. Back then it was to much of a risk, not only was it probable that there would be a melting internally but I was scared and covered in shame. Still at what seemed like the mercy of my physical self and unsure / unaware of why my body reacted the way it did.

As our fellow campers arrived, we watched from our camp. The dodge (our beloved converted camper-van) was placed away from the majority in the corner of the field. This placing of distance was a standard for me and Zippy as partly it meant a place for me to retreat to. A place I could complete my rituals to calm down and not being seen by others but there was a huge surprise to this normality!

Monday, 3 February 2014

The dreaded silent gap

So what I would like to tackle today is what I call the dreaded gap.

As you know, change is not something I adapt to easily and this morning was a classic example.

Over the weekend we had left our car at the office and borrowed the mini bus to help with a children's party on the Saturday.

Monday morning, this morning, Zippy reminded me again that we would drive the kids to school in the mini bus (not the car) . I was greatful for the warning of difference as I had again forgotten the change. His warning meant a softer landing on its encounter.

Tuesday, 28 January 2014

More movement please!!!

I get stuck in positions that are physically uncomfortable but it takes me ages to realise I am physically frozen and then move.

For example:

Like being sat in a chair with an outside door open making me cold.  I want to move and shut the door (adding to the situation that I'm hungry and thirsty). The thought of getting a cup to my mouth off a table that's so easily in reach - I stare at the cup willing it to fly to me but know you need to bend, move your arm, and pick it up. 

Uncrossing my legs, because my leg is going numb or my ankle is bent and uncomfortable way, I lean over the sink and drain vegetables whilst my feet are still planted by the cooker.  I remind myself, as I realise my back is twisted and mildly hurting, thinking "move your feet, make yourself straight in front of the sink, pivots and loads! pivots and loads! & remember pivots and loads!" 

Monday, 27 January 2014

Help! I want to leave Tesco but its hard!

Help I want to leave tesco but I can't.

This whole subject of food shopping has reared its head at various points over the years.

It started with colour, now what on earth might colour have to do with it you say?

 To me there are certain colours that do not work along side edible food stuffs. When the combinations of certain colours and food are seen together, I struggle to eat as they seem dangerous. Here are my top five in order of food / colour 'can go together' list.


Sunday, 26 January 2014

Finally being able to explain


I can write this now because since going on pills instead of being swallowed into blackness, which is undefinable, I seem to be able to still think instead of being engulfed into my body.

 This is the first time in my life I have ever felt enough logic to be able to describe any of it. As my confidence grows, I learn I will not be swallowed into silence which takes days to get out of. But now I am able from a distance to  put words to it / them / us / me.

The speed at which new subjects or voices come and go are to quick to explain or hold, most are paranoid and threatening 'if u don't do this this that will happen' (driven by panic some will get stuck and reoccur).   'She walked from Leeds to Chester' repeated over and over in a sing song rhyming way or 'Rose will die if u don't say what's in your minds eye'.

 These thoughts will mercilessly haunt me until absorption somewhere else is found or I put music into my ears. 


   Some times, if too many physical places are visited in the day then the present place becomes the whole day and everything else is like yesterday. So although today I have been to Tesco, dropped kids at school, dropped Zippy at work, been at home, and cleaned the computer desk; each of these moments I struggle to recall because I'm on a dog walk.

Wading through suggestions and voices consumed, although now I have remembered each episode so as to write this, they seem so unreal, as if they may not have happened. Remembering putting them in sequence is exhausting as it means going back in thought a million thoughts previously.

 For example the thought of Rose killing herself unless I text Primrose, this I put down to me being hungry this morning. But even now as I've written it I have awakened it again, and now know it will have to be processed and gone through all or got over again.

   How wil I process this I don't want to face it all again I don't have time. I will do it by picking kids up from school, a physical state change that will mean I forget all this. It will become yesterday and I will be shocked if I remember to read this note so much in one day in one hour.  

It's the  crippling realisation that it's been so hard to try and explain, This evil twin/intrusions have kept me from communicating.

  It's a bit like trying to explain an all consuming explosion. But only being given a split second of that explosion to do it in, before it rumbles it's  way into the physical, resulting in body shock. Brain rendered useless and void. 

  A state change, or safe bedroom and routine are the only way to try and keep going, calm down. This maintenance in its self is exhausting and constant.....Apologies I circle...

 I rely on my clothes for comfort they don't change. 

Smiling as I write and reread this I wonder what more words will be put to use, to explain what's always seemed impossible.