Thursday, 31 March 2016

Trust

Your so brave!
Your doing so well!
You've come a long way!
Keep going!

People often say these things, but what they don't know is that inside there is very little feeling. Days are some times broken down into moments or hours, and hours into minutes. Process and patterns are the slides which keep you moving. Process and patterns become the tried and tested formulas for being 'appropriate'.  If a situation or an event occurs once the correct pattern of behaviour / speech is found and matched, it is then employed and that apparently means you are doing well?

Sometimes the formulas let you down and you miss what is meant or a trigger can send you spiralling into uncontrolled panic. Then there's the fall back position of frozen silence. Silence is something very few understand but silence has been my friend since I can remember.  Silence is always filled by other people as people like filling the gap.

"Your so brave, look how far you've come"

"I'm actually a lot further behind than you see my friend"

What it's actually about is trust. Trust is being able to let your guard down and know that your safe. I get scared at the reality of how little trust their is inside me. But my real goal is not to be what looks right to others; my real aim is to feel trust. 

Sometimes I look at my children and I hurt inside as they have trust naturally there. I look at people around me and they have this beautiful 'trust'. I can't remember anyone that I had to trust until I was in my mid twenties and  it has taken me until now (aged 39) to realise that my trusting is still only functioning at about 30% (but at least its now there). I'm not ashamed of this or even care what happens next. Maybe 30% will be all it ever gets to but at least I know know what it is.

Wednesday, 24 February 2016

The most radical thing I can do today is....

The most radical thing I can do today will not be painting the other half of the bedroom that Zippy and I are making, as my temptation suggests.

Nor will it be:
  • Drilling seven new cupboards to the kitchen wall
  • Moving all my art things out of storage
  • Taking all and everything we don't need in the flat to charity shop or recycling center
  • Putting a tarpaulin on the lawn and digging out all the garden waste and making a new pallet compost bin
Temptation!  Suggestion! Frustration! 
Temptation!  Suggestion! Frustration! 
Temptation!  Suggestion! Frustration!
NOW!!!NOW!!!NOW!!!
'I am more important!!" 
"no I am more important!!!!"
 "achieve me and I will be the answer!" 
" no I'm the answer!!"
Run freeze run freeze run freeze run freeze run freeze!!!!!!!!!!!!!!!!!!!!!

It will not be:
  • Clearing out my daughters room and scrubbing the paint off her window
  • Painting four pine wardrobes, five chest of draws and four side tables
  • Hoovering the flat to within and inch of its life
  • Cooking mushy peas from scratch
  • Painting the floor blue
  • Swapping all the mattresses around

  • It will not be giving into all the voices dancing and colliding as they shout and whisper what "should be done?". 
  • It will not be giving into the frustration of the looping 'One Direction - Story of My Liiiiiiiiiiiiiiife'! Stupid Unfinished song line that I woke up and that is presently is trying to knock Kate Bush (CBE) of her perch. 
  • It will not be giving into the need to hide in bed and lock the door and wish the day away, whilst simultaneously thinking I actually have enough energy to run twenty marathons and cook dinner for half of London.

Actually the most radical thing I can do today seems harder than all those things.  
Today I need to have a shower and wash my hair.

Wednesday, 13 January 2016

 I was not some one who looked liked they needed love. I was not someone who made it easy but let me tell u what I am I am the most loyal person u will ever meet I am someone who never never gives in I fight where no one else is prepared to tolerate. If au have my trust U have my heart and my blood . When I believe in some thing I believe in it 
 When I see something theta wrong I fight it 
 When I don't understand or comprehend I can't fight of my uncomfortableness I fight it 
 When I see live I distrust it except ur I love it
 I am the Samaritans friend
 I am the person who would offer to go in Daniels place to meet Goliath
I will go beyond and beyond again

So for all u that think ur equally determined to love me, I say thanks u I say thank u on behave of all tgh

Thursday, 12 November 2015

From eight to nine

I've not blogged for a while, not because I haven't wanted to but because I've been learning. For those of you that know me, I love to learn. Sadly however I have had to come to a realisation that no matter how much you "know" or can understand whats "happening" knowledge itself will only get you so far. It can give meaning, help you express and communicate, it can even give you confidence, but there are some things knowledge can't do.

It can't stop your over wrought nervous system shaking when something spontaneous happens, it can't get rid of emotional pain trapped inside you, it can't help explain fear even if the logical explanation might help comfort "it" a little.

So as those of you who read my last post have realised, I have got to a stage where I am ready to introduce my mind to my body. "What?" you may ask "your attached to your body, what on earth do you mean?".

Saturday, 10 October 2015

Please dear head let body be found.

I have a very powerful head
It helps keep my body in check

But the time has come no longer can we share
This power distribution of dominate  head down fear

Head you must back off and let body be
For it to has a right to feel

It has a right to have its space
Although it may need your help to get to this place

So dear head would you please be less arrogant and proud
Please dear head allow body to be found.

Let me tell you about body my dear mind
It took the physical brunt of a lot of unkind

And yes I know you intentions were good
You cut body off because a plate of pain is not good food

But brain you are strong you have looked after us well
It's time dear brain to let body also dwell.

Friday, 9 October 2015

Speech and communication

"Can you put the peanut butter in the box please?"
Interpretation, "Can you put the butter away in the fridge?"

"I've made a rose pot last night"
Interpretation, "look I designed some rose patterns on a wooden vase last night (art)."

"Can you put the sandwiches in the boot?"
Interpretation, "Is the food in the car?"

Those of you that know me on a day to day have got used to my inability to consistently communicate. Some days I am able to speak consistently and coherently but other days it all just comes out wrong. Sometimes this misattunement can go even further and I find myself unable to speak at all. I know exactly what I want to say, have the words in my mind but they just won't come out. If I manage to force them out it will be because who ever I'm talking to has waited (sometimes up to a minute) for me to rally round and find a way.


I find conversations extremely hard. On a one to one there is often no problem, but put me in a group and its extremely stressful. Then put that group in a restaurant or a bar and I will openly admit to often resorting to alcohol to keep me relaxed enough to have any hope of surviving.

Recently I was reminded of the basics. When you have a brain that is hard wired to constantly scan for danger it is impossible to function efficiently if you feel unsafe. When under threat or perceived threat your pre frontal cortex (the logical bit) is switched on and off. Chemicals produced during this process such as cortisol and adrenaline can remain floating in your system in debilitating amounts for up to four hours after being released in enough amount to help you lift a car (pass the wine please or can I go to bed now).  

Add to that the unsafety of not being in total control of your inner world, I often have looping lines of songs that haunt me for days, ringing in my ears, banging in one ear and voices arguing or interrupting my thoughts. The voices may be commenting directly on the situation or giving me advice about the person Im speaking to, sometimes they just challenge me to swear F***k OFF!!!!!, they loop often saying the same thing over and over whilst getting louder which will invariably bring out maybe another two / three voices to argue back or endorse whats going on. (I ask for more wine to numb things,"I need to go to my room").

Part of my healing journey has been to acknowledge that there are very few spaces I feel safe in. I carry within in me enough to make the safest place unsafe. I feel like a walking sabotage. I have had to learn that this sabotage is not a direct reflection of my character but it is an addon to my fragmented identity. In the past I have thought I was just a very bad person rotten to the core. In those days my lack of understanding would result in distruction of some kind which would then just confirm to me my horridness.

But I have learnt other things aswell. I have learnt that to try and deny the voices, the need to sleep, the banging, looping, swearing and inability to communicate only makes it all worse. I have learnt that to try and constantly "make myself like look like everyone else" also makes things worse. We live in a new era of understanding and tolerance where expression is allowed and I want to say thank you to all my friends and family who make me feel safe and normal by letting me be and do what is "my normal".