Sunday, 6 July 2014

My Creative Twin

Been wanting to write about this for a long time, finally there seems to be enough meaning.

As you may or may not know I am creative , having what I almost term as a relationship with it (creativity). I would describe it as yet another split in my personality (me and it /  it and me).


Last year I joined an art group in fear and trembling knowing it was time to meet my nemesis. Prior to this I had only allowed myself to only make crafty things, no paint or unstructured elements permitted.

But I have a twin, an untamed sibling, and we are joined at the shoulder. She has her own head and neck and I have mine. We battle as to who's eyes to look through and whose ears to hear with; she works alone and only in isolation; she can not communicate but she is dominate.

From 2000 till 2012 I kept her hidden and insisted on my vision only. I explained to her that her ways of doing things was impossible! I explained to her that I needed connection and relationship, unwilling to cope with what she produced I feared dying myself if it carried on. We share a body but constantly fought and argued and she won to often.

Tuesday, 24 June 2014

Complex PTSD

Communicating more. Answering a frequently asked question. "What is complex PTSD?, How is that different from PTSD, chronic or acute PTSD.

Monday, 9 June 2014

Looping

One of the common things I tend to be talking about with people at the moment is this terrible business of what my sister and I have nick named 'Looping'.

Looping from our perspective is defined as 'something- be it  a physical action, internal thought or external that dis-empowers you by your inability to control or choose to have its company'. 

Now I tend to mostly have only 'internal thought' and 'speech' looping

So I will write from that aspect.  My aim is to communicate some of the things I have identified.

My 'loops,' as I posted previously, are repeating suggestive voices, unfinished lines of music and external speech rules which must be completed in order for speech to move forward to another subject. I am never without noise in my head because of my tinnitus, so I see that as my base level on a 'good' relaxed day.  However I am learning now to be able to map the relationship between life stressors and the other 'loops'.


But another strange common denominator seems to be appearing in the patterns, and that is the frustration of being unable to complete.

 I'm staring to learn that you either give in to 'looping' and it rules you or, as I am trying at the moment, you try to embrace part of what drives the loop to start again and that for me is a great fear of finishing.

I'm not going to say that I understand this because I don't, I just know that when say a song line is repeating 'she sailed away, she sailed away, she sailed away'; I might as well be wading through setting concrete to get my brain to go 'she sailed away on a lovely summers day on the back of a crocodile'.  If by some miracle I manage it, it will quickly be replaced by another line from  another song.

So I have to ask myself is it worth the fight and the frustration, or do I just pack it away with the ringing/ banging and 'get on' with my day?

It's a catch twenty-two because mentally you then must find something equal to or above in intensity to be able to ignore all the other 'looping'. Achieving this will often mean rapid thinking, rapid speech or strenuous physical or repetitive movement.

It's hard to write this blog as I don't have any set solutions, I just know that I journey along a road of ups and downs. Days of coping, and some days of hiding. Maybe I just now accept the journey for what it is unknown. 

I have found comforts though that make a level of peace achievable and I share with you two of my best helpers. 

1. TV
Watching a few episode of a series back to back on a bad day can be like manner from heaven. This does unfortunately means that nothing else gets done however as I'm sure other 'loopers' will agree, piles of washing and 'must do's' can take  second place if you are actually in a position to get calmer for a day.

2. Music
This is my gem. I am often seen wearing headphones and what I do is choose a song that I can cope with and set my phone to repeat that song. It has been known for me to listen to a repeating song all day and all the next day until things calm done. What I find is that, where as my 'loops' don't end, the song does end and then it starts again and finishes again. This gives me such relief  and a sense of 'winning' as I  know I am not going to get stuck, the phone in a way takes control, guarantees to carry me over  into wonderful endings.

It's all a wobbly wobbly world, we all have our quirks. I'm aware I've not finished this blog, as I have not written about speech patterns or put a proper ending to anything but, ironically I need to go and fold some books now to calm down. Thank you for reading and thank you for journeying with me.

.........

Thursday, 15 May 2014

Some of the sounds in my head

I've been learning to communicate recently. But words are often not quite enough. Below are two of the closest matches I can get to my tinnitus and also to when all of my voices are out at once and arguing with themselves.

As you can imagine when both are in overdrive, overwhelm and freezing are often the best my brain can do, as it tries to process the internal and external stressors of daily life.

1.18 minutes long.

Voices and looping --- http://youtu.be/uLni3XEHjTw 
.39 seconds long.



Wednesday, 7 May 2014

Changing a tyre

Recently I have been acutely aware of how much Zippy has to plan ahead for our family. I have, in light of this and the doubling of my meds, been trying to take more pro active responsibility.

The tyre in our car needs changing! I am going to be pro active! I am not going to leave this for Zippy to do!

Boldly I set out to 'Sam Tyres'. I gulp and reason with myself that 'garage land' is a land I understand, I can do this!!!

The car pulls right and immediate right again into the thin blue gates 'Sams Tyres'. The first thing that strikes me is a scene of utter chaos and the noise. 

I have pulled into a car park of Turkish, Afghan, African, Polish, Eastern European 'man land'. Theres a man with velvet red slip on shoes. Another with fake crocodile boots, yet another in sports direct steel toe caps, all covered in plaster dust.. It goes on.

Somewhere in my vague consciousness I can here all the various languages. I'm aware of a very un-English like jumble of cars and vans all trying to be 'next' for a new tyre. Horns are honking and in the din I realise I have parked right in the centre of the gates.

I have no clue how to express or navigate me and my car's needs. I get out, breath and look for eye contact with some one who understands I am a customer.

No one steps forward or reasures me with a helpful glance but I'm bloody minded and I stride up to a ford transit perilously balanced at 45degrees. I demand help from the mechanic by standing in a way that casts a shadow over his work. He speaks first "tyre?" he half shouts in an accent, I'm taken aback so I nod. "Tyre!" He goes on using his fingers "One two three four?" He looks at me questionably.

I'm not sure what to do, aware that velvet red shoe man has turned with interest in his skinny jeans. I hold a finger up "one" I reply to the mechanic who is already strutting purposefully towards our Citreon.

Taking a cigarette out of his top pocket, mechanic man lights up and roams around, "two" he says challengingly. "One" I say firmly, pointing at my offside front tyre. 

He seems disappointed, I feel triumphant that I didn't give in. "Drive your car" he commands pointing at what looks like an impossible path to the garage.

I feel myself freeze, I know I can't do it and my heart pumps. I hold up the keys and squeak "you". He looks disappointed, or at least resigned, and hops in the car.

Honking the horn repeatedly, an incredible vehicle dance starts. Men seem to appear from everywhere. Guiding, suggesting, hustling, whistling, until my car creeps its way through all the others to the front.

I myself am guided into a ply board makeshift hut. A hut containing three white garden chairs. I feel ridiculous,  have lost control and can't leave! My car is now trapped by others and I'm sat in a little 2m by 2m hut with its low roof and walls painted in yellow gloss.

Wondering how to keep calm I struggle to sit. Should I cross my legs, sit forward or sit back. Knowing none if the panic is really relevant, I watch as my car is jurked up and down on the trolley jack and air drill screeches. I remember all my lessons on tyre nut torque and wince. Then I look in horror as at incredible speed and co operation due to yet more honking and gibbering, my car is skimmed out of the garage across the car park and out the gate.

That's it I crumble! I don't know whats happening! Have they stolen my car? Are they test driving it? Where's it gone? I'm supposed to be collecting the kids from school in twenty minutes!!!

Body frozen unable to move, the same mechanic ambles over, "your car is dirty", I stare at him unmoving, "dirty your car", he seems slightly unnerved. I hear from far away a voice exclaim in a very posh voice "oh it's terribly filthy, most disgusting".

The words have come from me only I don't recognise them or the accent at all, dismayed I realise I must try and match that accent, but I'm so confused by it myself that I cannot. 

"Thirty pounds" says the mechanic. Not understanding all I can think is wheres my bloody car! "Thirty pounds for tyre and car wash" he says pointing out of the gate, "you pay card or cash?". 

Now when frozen (those that know me understand), I can not move until some bizarre thing goes ping in my head. However if someone else gives me a command then I will move instantly.

Thankfully mechanic man at this point gave me his full attention, (mostly because I think he thought I couldn't pay), squaring me full in the face he firmly repeated "come pay, come pay" waggling his finger at the bright blue hut opposite the yellow century box.

Having payed by following his blunt instructions, I then walk with concrete filled legs across the endless length of the car park. (Im sure it's tripled in size and velvet red shoe man is still wandering about on high alert). 

Through the blue gates and through a similarly styled yellow pair, in relief I found my car. Clean, sparkling, glossed tyres, polished interior and smelling of sweet spring flowers. 

Shocked, I smiled, marvelled and slid into the drivers seat. Looking at the gleaming gear stick and buffed glass. Where else but Tottenham could you get such a multi cultural experience, a full hand valet and a new tyre for thirty quid?

Thursday, 1 May 2014

Conversations

Silence is a very safe space.

Silence is something that's easy to achieve but silence is a mock friend. It is impossible to build bridges out of silence.  Similarly only listening and commenting on what everyone is doing with their lives is equally one sided and isolating.

So what are these things called group conversations. How on earth do they work. I find them terribly confusing but am determined to persevere.

Recently I realised a great longing to be connected to people, however, I have not got much training in the correct ways of making this happen. The following are some of the formulas I have tried to work it all out.

Friday, 11 April 2014

Three in one

There is a great big wall in my life at the moment. Split in two: one Carwen on one side and one Carwen on the other  (and then a third watching from somewhere high up).

Firstly let me describe the wall, it's made of thick concrete and it's all grey. The surface is smooth on one side but gritty and sandpapery on the other. It's tall so so tall and it's wide. In short it's impenetrable and it's so densely made even sound can not get through. The Carwen stuck on one side has no chance of getting to the Carwen on the other. Only the Carwen high, high up can see into both sides.


Let me describe each Carwens predicament. 

The Carwen on the left hand side is presenting what look like anger. She is volatile and flies off the handle in a moment. She is the strong, the determined and the fighter. The wall on her side is smooth and she uses it as a guard to watch her back. If anyone approaches this Carwen they are met with suspicion that can turn into attack at the mere fluttering of potential threat.

The Carwen on the right side is beaten. She has been trapped by this wall for such a long time. Her body is thin, tired and bruised. She loves the Carwen in the left hand side, she wants to calm her down. Understanding that really angry Carwen is only scared, the anger is a front for deep pain.

 But now she sits immobile, the wall on her side is  sandpapery and rough. It scrapes and shaves at her thin arms and legs. She has sat now in defeat and despair, knowing her twin is hopping around misunderstood and communicating everything that is not true.

The third Carwen, the observer. She looks down on the other two. She watches as if it were an amusing game. She looks from one to the other but feels nothing. There is not much to write about her as looking is really all she does. 

Occasionally she considers climbing down to help one or the other but she is met with such confusion as to who is in most need. So the result is to just sit passively and not get involved. She is frozen by overwhelm.

This Blogg I dedicate to my young fighter friend. I write on your behalf as you are to young, in the hope that my experiences will help others see meaning in yours.